We met with Drs. Packer and Rood. Mason's mixed response to the radiation, where one new lesion forms while all the others diminish (i.e., respond appropriately) is very rare, something they only see every two or three years. They are going to repeat the MRI just to make sure the mass at the base of the spine is not "blood debris". Given that his bowels were not working, and the mass is right where those nerves are, it is highly unlikely that it is something other than a tumor.
NIH claims that the area of the mass was included in the radiation. We are getting the reports. There is no way to radiate more.
So, we are on to experimental treatments. He still has to wait another six weeks to start the experimental protocol, as he has to be 12 weeks post-radiation to start. In the meantime, he will take oral chemo to try to keep the mass from growing. The experimental treatment is a combination of two drugs that have worked to eradicate medulloblastoma in mice.
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In one of the stars, I shall be living.
In one of them, I shall be laughing.
And so it will be as if all the stars were laughing when you look at the sky at night.
--------From the Little Prince
What Cancer Cannot Do-- Cancer is so limited; It cannot cripple Love; It cannot shatter Hope; It cannot corrode Faith; It cannot destroy Peace; It cannot kill Friendship; It cannot suppress Memories; It cannot silence Courage; It cannot invade the Soul; It cannot steal Eternal Life; It cannot conquer Mason's Spirit!
In loving memory of Mason Robert Leach
In one of the stars, I shall be living.
In one of them, I shall be laughing.
And so it will be as if all the stars were laughing when you look at the sky at night.
--------From the Little Prince
Mason Leach Superstar Fund has its own website and blog!
About Me
4 comments:
You don't know me but I just wanted to say that I am sending you all good vibes/prayers.
You don't know me either but we have a mutual friend and I have been keeping tabs on Mason's progress. Please know you have many "strangers" pryaing for him and for your family.
You do not know me but Mason has been on our church's prayer list. I have been following this story and praying for him. I am praying for a miracle for Mason.
"God's strength is made perfect in our weakness"
We are sending our love, strength, courage, and hope to all of you. Mason, we love you so much. You are an amazing little boy and we are holding you tight in our hearts. Please give Mateo a big kiss from us, too.
xoxoxo
Ted, Lisa, Alex, and Sofie Craig
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