Update

Mason continues to be off the clinical trial as his counts have not increased enough. the doctors said it usually takes about a week for platelets to recover. He has two weeks to get his platelets up or he will be off the clinical trial for SAHA. It they do reach 100,000, he will start the reduced dose.

We had meetings with hospice this week. It was a sad milestone to reach, but we are not giving up hope. Hospice can come in and just reduce the time he spends at the hospital for services, so he can spend more time at home and have fun with us and his friends. They will also do art therapy with him to alleviate some of his stress and depression about what is happening to his body.

He has been having more leg pain. They started him on a new medicine and he is on some pain meds 24hrs a day now. Hopefully this new medication which is actually used for seizures, will reduce the leg pain. He has also had some intermittent double vision, which is not a good sign.

On a brighter note we will take Mason in a limousine- per his request- to the DC United game tomm night. We will tailgate with friends and try to enjoy the luxury of it all. It is the same limo company that Make a Wish sent for his Disney trip, so he is psyched.

We are also planning if all remains stable to go in a RV camping on Columbus Day weekend with Kirk's sister in a state park near Baltimore.

He has enjoyed his e-cards so keep them coming. We got the webcam set up in his class. Thanks to David and Wendy for working so hard to make that happen. He had fun and we will use it when he is not able to go to school to connect with his friends. Thanks to HopeCam.org for the computers and donation of the webcams. Anyway we can connect him into friends is always positive.

Keep praying. If love and prayers could heal him, he would have been healed by now a million times over.