I know many of you have been anxiously awaiting news from yesterday. Sorry for the delay but the doctors were also reviewing things and we did not get the call until later in the day.
SO here is the news:
The spots on his brain and the one they had been concerned about last time are stable- no change. The spine in the thoracic area- appeasr to be slightly larger - only by 1mm so it is negligible. It may just be from a different angle.
The tumor at the base of the spine appears to be the same. There was some concern that it had thickened and the debate is still out- but it appears to be about the same. It took up more dye this time and more evenly. That is a bit concerning. There was some debate about dye uptake on the spinal cord but consensus seems to be that it is just a natural function of dye uptake.
So what is the plan? The plan is we will do a spinal tap next week to see if there is disease in the spinal fluid. We will change his meds to the SAHA study- the docs are working on the logistics of this. We can always go back the Temodar/Tarceeva combo if that fails afterward since it kept him from progressing too much.
His neuro exam the other day illustrates he has decline in his nerve responses in his sacral area so we are seeing clincial evidence of something. We will continue to give him the higher dose of steroids and give him enemas if he cannot go to the bathroom for more than two days. We will need to catheterize him this week to test how well he is emptying his bladder after he has gone to the bathroom.
We will send his films to NY, NIH and St. Jude's to see what they think. We will do another MRI in two weeks so he will have the prerequistes for the SAHA study.
SO that is it for now. We'll update as we have more information.
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In one of the stars, I shall be living.
In one of them, I shall be laughing.
And so it will be as if all the stars were laughing when you look at the sky at night.
--------From the Little Prince
What Cancer Cannot Do-- Cancer is so limited; It cannot cripple Love; It cannot shatter Hope; It cannot corrode Faith; It cannot destroy Peace; It cannot kill Friendship; It cannot suppress Memories; It cannot silence Courage; It cannot invade the Soul; It cannot steal Eternal Life; It cannot conquer Mason's Spirit!
In loving memory of Mason Robert Leach
In one of the stars, I shall be living.
In one of them, I shall be laughing.
And so it will be as if all the stars were laughing when you look at the sky at night.
--------From the Little Prince
Mason Leach Superstar Fund has its own website and blog!
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1 comment:
I am always thinking about you Mason, and sending you the most positive vibes I've got!!
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