Hoping for a miracle....

Well Mason cannot seem to get a break. We had an MRI yesterday and there is growth of the cancer already even from a few weeks ago. It is sad and frustrating that this will not let him go.
His oncology team at CNMC has been wonderful. We spent the last week looking at options and they have spent alot of time explaining everything and the clinical trials that may or may not work for him and why. It really helped us process our next steps for Mason. A special thank you to Dr. Rood, Debbie Lafond and Elena Padua and the whole team.

Our next steps:
We won't go through the process of how we decided what to do, let's just say there are not many choices for him now. So we will go on the SAHA study. SAHA seems to function as a tumor suppression agent. SAHA may also stop the growth of cancer cells by blocking some of the enzymes needed for cell growth and by blocking blood flow to the cancer. This is the one that worked in mice and is now in Phase 1 clinical trial. Phase 1 clinical trials are long shots.

Phase I trials are the first step in testing a new approach in people. In these studies, researchers evaluate what dose is safe, how a new agent should be given (by mouth, injected into a vein, or injected into the muscle), and how often. Researchers watch closely for any harmful side effects. Phase I trials usually enroll a small number of patients and take place at only a few locations. The dose of the new therapy or technique is increased a little at a time. The highest dose with an acceptable level of side effects is determined to be appropriate for further testing.

He will start on Thursday. All we can do is hope for a miracle that he will beat the odds. If Mason's spirit and determination has anything to do with it- he just might.

In the meantime, we are getting ready for family to come down this weekend for his birthday bash. We are excited. We got him a ride on jeep that he can drive around. It has two seats for him and Mateo. We will post the photos and video Sunday.

He also has made some requests that we might just do. He wants to go camping in an RV and take another limo ride like the one he did going to Disney with Make a Wish. Kirk and I are making plans to make this happen.

All smiles and positive thoughts for Mason.