The platelet counts are back and he will continue with the SAHA at a reduced dose. We will have to hope it does not drop his platelets at this dose. He will be off the trial if that happens. So we bite our nails and wait.
He continues to be on pain meds for his legs 24hrs a day. But he went to school twice this week and had a good time. He has loved the e-cards everyone has bee sending. So thanks for making him smile.
He has also discovered that the Java Shack- a local coffee house has great pumpkin muffins and good coffee in big cups that he likes to share with Mom. It helps when he is tired to perk him up a bit. He said to me today" I know why you drink this stuff Mommy, it wakes you up!"
We will go on our RV trip this weekend and go to Six Flags. Kirk's sister and her kids will come down and join us.
On the sibling side- Mateo could use some e-cards too. He has been a bit down lately and could use some cheering up. I think he is realizing how Mason is declining as he does not ask him to play soccer in the backyard as much and is cautious arond him for the most part. He watches everything and processes it so we have to be careful what we say in any conversations around him.
Both boys are excited for Halloween. We will decorate this weekend. They got these horrible masks that they call screaming bleeding that have blood that pours down the face. They have begged me to get them since they saw them in CVS a couple of weeks ago. I have been trying to convince them to be something alittle less horrible, but to no avail. Some battles are just too silly to fight.
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